Over the past 15 years, a series of empirical studies in different countries have shown that our increasing genetic knowledge leads to new forms of exclusion, disadvantaging and stigmatization. The spectrum of this "genetic discrimination" ranges from disadvantages at work, via problems with insurance policies, to difficulties with adoption agencies. The empirical studies on the problem of genetic discrimination have not gone unnoticed. Since the beginning of the 1990s, a series of legislative initiatives and statements, both on the national level and on the part of international and supranational organizations and commissions, have been put forward as ways of protecting people from genetic discrimination. This is the first book to critically evaluate the empirical evidence and the theoretical usefulness of the concept of "genetic discrimination." It discusses the advantages and limitations of adopting the concept, and offers a more complex account distinguishing between several dimensions and forms of genetic discrimination.
Coulter, M. L., Myers, R. S. and Varacalli, J. A. (2012) Encyclopedia of Catholic Social Thought, Social Science, and Social Policy: Supplement. Lanham, MD: Scarecrow Press. Devandas, C. (2008) 'El Convenio de Asturias de Bioética: ...
This book offers some clarity as to the choices that have been made in various legal systems, both national and international, with respect to the regulation of genetic information.
Hall, Mark A. and Rich, Stephen S. Laws restricting health insurers' use of genetic information: impact on genetic discrimination. American Journal of Human Genetics 2000, ... Proceedings, Denver, Co, Oct. 24–27, 1998, p. 164.
Lisa Schur, Douglas Kruse, and Peter Blanck, People with Disabilities: Sidelined or Mainstreamed?, 2013 Eliza Varney, ... Disability and the Good Human Life, 2013 Robin Paul Malloy, Land Use Law and Disability: Planning and Zoning for ...
This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening.
Challenging Genetic Determinism argues that hypotheses cannot be based solely on genetic factors but must take into account the context in which these factors occur.
In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments.
This volume outlines potential positive and negative effects of genetic research on minorities, individuals with disabilities, and those of diverse sexual orientations.
This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.
After discussions with the National Cancer Institute and the Department of Energy the Board on Biology of the National Research Council agreed to run a workshop under the auspices of its Forum on Biotechnology entitled "Privacy Issues in ...