From My Mother: Surviving and Thriving in a Family Ravaged by Genetic Disease

Description

"Born into a family ravaged by genetic disease, Darcy Leech shares a coming of age story as much about beginnings as endings in exploring the life lessons learned in losing her brother and mother to myotonic muscular dystrophy. Leech narrates a moving meditation of the enduring mysteries of what dormant harbingers of genetic disease lurk within, the surprising possibilities in loss, and the deep resilience of the human spirit. The narrative highlights the relationship between diseased mother and healthy daughter, revealing Jo Lyn as a woman of strength, a caretaker who quietly marched toward her own degenerative weakness, someone grappling for identity while ostracized by an invisible disease, and a resilient spirit who endured holding the child who inherited her genetic misfortune as he took his last breath. From My Mother is the honest story of finding joy through loss, living fully within limitations, and the universal struggle of grappling for identity against the device of innate genetic code through invested love and personal choice"--darcyleech.com

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