Advances in medical science and technology are saving the lives of more children worldwide than ever. Some will survive and live out a normal life expectancy, others will have a life-limiting/life-threatening diagnosis where death may come early, and still others will live on well past projected life trajectories into adulthood. With so many different care pathways, children, parents and communities often find themselves facing challenges for which neither they nor their health care systems are prepared. This book aims to open a global discussion of these issues. Drawing on author Rita Pfund's 2007 text Palliative Care Nursing of Children and Young People (Radcliffe Publishing) it invites paediatric palliative care professionals, parents and chidren from around the globe to share their knowledge and experience it will be of interest to paliative care professionals, parents, policy makers and academics who have an interest in ensuring that all children and their families, regardless of geographical location, gender, ethnicity or socio economic class have equal and guaranteed access to comprehensive paediatric palliative care services.
Cultural Changes in Attitudes Toward Death, Dying, and Bereavement. Springer Publishing Company. Kreicbergs, Valdimarsdóttir, Onelöv, Henter & Steineck. (2004). Talking about death with children who have severe malignant disease.
'Pediatric Palliative Care', the fourth volume in the 'HPNA Palliative Nursing Manuals' series, addresses paediatric hospice, symptom management, paediatric pain, the neonatal intensive care unit, transitioning goals of care between the ...
In: Oxford Textbook of Palliative Care for Children, (eds A. Goldman, R. Hain and S. Liben) pp. ... H.J. (2002) Family perspectives on the quality of pediatric palliative care, Archives of Pediatric and Adolescent Medicine, Vol.
Many parents and carers, with a little investment of time, can learn clinical skills previously regarded as solely the ... True family-centred care therefore acknowledges the parent or carer as a member of the multidisciplinary team.
The presence of severe cognitive impairment does nothing to reduce the experience of pain and despite the difficulties involved it remains of the utmost importance that ... In: Pain 2016: Refresher Courses. 16th World Congress on Pain.
Cohen, J. & Emanuel, J. (1998) Positive Participation: Consulting and Involving Young People in Health-related Work: A ... Dixon-Woods, M., Anwar, Z., Young, B. & Brooke, A. (2002) Lay evaluation of services for child with asthma.
Clear and detailed, this text reflects both the uniqueness and diversity of contemporary children's nursing and utilizes images and case studies to provide a holistic insight into the practice of care planning through the reporting of best ...
From a psychological perspective, parents may gain reassurance from knowing that their child was kept comfortable and presumably did not suffer. This has implications for the bereavement process and long-term adaptive coping.
Metastases do occur via vascular infiltration and often affect the lungs with about 20% of children also having metastatic lung disease at presentation (Meyers, 2007). PARENT CONVERSATION Natalie is the mother of William, aged 2 years.
The lack of clarity around music therapy service evaluation as a distinct activity is reflected in the paediatric palliative care literature where diverse evaluative perspectives have been documented. These perspectives emerge through ...